Archive for the 'Personal Experiences' Category

Kim’s Story

I was 45 when I got TM. I was on a business trip to Dallas, TX when I was stricken with this disease. I went out Sept 4th, 2004 and was to only be there a week. I used to live 5 miles from the facility I was helping at so every week I volunteered to stay another week to
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Julia’s Story about her mom

I was reading about T.M. on your website and people’s personal experiences and it seems that no one was paralyzed or had any permanent damage. My mom was perfectly healthy one day, and the next was paralyzed for life from her mid chest down and she has no bladder or bowel control. She has been in a wheel chair since
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Tom’s Story

I am a 50 year old male that was dx with TM after 14 long months. I first got sick with the Norwalk virus and then 14 months later and tons of tests they (neurologists) dx me with tm. I got hit so slightly the doctors cannot determine where the lesions are. I have all the symptoms and having lived
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Janelle’s Story

The Beginning There is no certainty as to when my symptoms truly began. I say this because in 2009 I started to have random episodes of uncontrollable vomiting. I didn’t have the stomach flu and the episodes would last only one or two days. I also didn’t think much of it until I started to have more frequent and unusual
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Rose’s Story

HOW IT BEGAN On May 15, 2007, I was having a normal Sunday evening at home, when after working on my laptop for a few hours, I decided to go to bed (at 10:30pm). Once I put my feet on the floor, after having them up on the coffee table, I noticed my left foot had fallen asleep…really badly. But
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Kate’s Story

My name is Kate, and I’m 24 years old and have just recently been diagnosed with what they think is Transverse Myelitis. I’m a student, and had been studying for long, long hours in order to prepare for my finals, and had noticed that my butt felt numb. I figured it was just because I’d been sitting on it so
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Joshua’s Story

I had a terrible bout with TM last spring. It was so horrible that I can hardly believe it really happened. While I was going thru it I would tell people it was like living in a science fiction horror flick! NO EXAGGERATION!. I am driven to make something positive out of this terrible experience. I have started to write
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Adam’s Story (husband of Rox, a patient with TM)

This story is told from the perspective of Adam, Rox’s husband. When my wife was diagnosed with Transverse Myelitis I felt useless; unequipped to provide her with the support and guidance that she so desperately required, and that doctors were not providing. TM did change her life overnight. Rox had always been very active, self-motivated and driven. TM suddenly put
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